Spotlight: METAvivor


METAvivor stops by Denton, TX to visit BCC founder Gayle Sulik during its Sea to Sea for MBC tour, 2015.

METAvivor is a volunteer-led organization run almost exclusively by those living with metastatic (stage 4) breast cancer, or MBC. METAvivor calculated that MBC research receives less than 5 percent of all money raised for breast cancer, yet it is MBC that is responsible for the more than 40 thousand deaths from breast cancer every year. In an attempt to fill part of the research gap, METAvivor awards research grants to individuals actively engaged in MBC research and whose proposals show distinct promise in making a difference for the stage 4 breast cancer community.

What we love about METAvivor is its commitment to people living with, and dying from, metastatic disease. In addition to developing a peer-to-peer support training program, this group cuts through the pinkwashed propaganda to speak out honestly and practically about the fact that there is no stage 5 breast cancer. The goal of their research funding is to transition metastatic breast cancer from a terminal diagnosis to a chronic, manageable disease with a decent quality of life. 100% of donations to METAvivor fund these research grants.

To ensure high quality science, METAvivor’s research grants program is overseen by experts who share their goal, and who have dedicated their careers to metastasis research. All applications are peer reviewed and scored by at least two expert reviewers who donate their time, and only the highest scoring applications are presented to METAvivor’s Board of Directors for a final decision. Grantees are announced every year on October 13th, Metastatic Breast Cancer Awareness Day.

On October 1st, METAvivor launched a new social media campaign called The Numbers Have Names. (#NumbersHaveNames) The campaign is designed to raise awareness of MBC, to honor the lives of people who have died from stage 4, metastatic breast cancer, and to put faces and names on the statistics. On average, 111 people die of breast cancer each day in the United States. Every day this month, METAvivor will post photos and memorials of people who have lost their lives to metastatic breast cancer. If you have lost a love one to MBC and would like them to be featured in one of METAvivor’s memorial posts, please send a photo, date of diagnosis, and/or date of death, and a sentence about them you would like to share. Email

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Rachel Cheetham Moro (1970-2012)

Breast Cancer Consortium features our friend and founding BCC member, Rachel Cheetham Moro. Rachel was first diagnosed with breast cancer in March 2004. She died from stage 4 breast cancer on February 6, 2012 at age 41. Rachel was committed to rocking the status quo and was tired of the pink charade. She wanted progress. And she knew that millions (even billions) of well-meaning supporters could only get us so far if resources were siphoned into kitschy slogans and awareness campaigns that do more to misinform the public than raise its consciousness. Rachel knew that following the money would lead to key players in the breast cancer game. What’s more, she knew that their interests had a major impact on the rules and the outcomes. With nothing to lose but her life, she set out to expose it for what it was. She became a change agent. We miss her dearly.

Learn more about METAvivor and metastatic breast cancer:

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