Finding Risks, Not Answers, in Gene Tests

“Finding Risks, Not Answers, in Gene Tests,” By Denise Grady and Andrew Pollack. The New York Times.

Within the next year, at least 100,000 people in the U.S. are expected to have genetic tests. Building on the success of using genetic tests to uncover inherited risks of breast, ovarian and colon . . . → Read More: Finding Risks, Not Answers, in Gene Tests

Cancer and the Secrets of Your Genes

“Cancer and the Secrets of Your Genes.” By Theodora Ross, The New York Times.

An oncologist looks at the evidence for genetic testing in certain circumstances. This takes the conversation a step further.

On Aug. 6, researchers announced in The New England Journal of Medicine that they . . . → Read More: Cancer and the Secrets of Your Genes

Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff

“Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff.” Published by Ayanna Monteverdi, Mendelspod.com.

The first genetic counselor at Yale’s School of Medicine, Ellen Matloff has had a front row seat to the long saga of gene patents, particularly the BRCA patents of Myriad Genetics. In today’s interview Ellen recalls the days . . . → Read More: Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff

A Genetic Counselor Explains How Gene Patents Harmed Her Patients

“A Genetic Counselor Explains How Gene Patents Harmed Her Patients.” By Ellen Matloff, MS, Yale Cancer Center, Breast Cancer Action.

Editor’s Note: On July 13, 2013, the Supreme Court ruled in our favor to overturn Myriad Genetics’ patents on the “breast cancer genes,” BRCA1 and BRCA2. We were proud to be the only breast cancer . . . → Read More: A Genetic Counselor Explains How Gene Patents Harmed Her Patients

Why Jolie's cancer test costs so much

Published on CNN, May 24, 2013.

(CNN) — Angelina Jolie, when writing about her preventive double mastectomy, did not discuss how much her surgeries cost, but she did mention that many women would not be able to afford the $3,000 to $4,000 test that led her to make the decision. What she failed to say . . . → Read More: Why Jolie’s cancer test costs so much

Angelina Jolie and the One Percent

“Angelina Jolie and the One Percent” was originally published in Scientific American on May 20th, 2013.

After learning that she had inherited a mutation on one of the so-called breast cancer genes, actress Angelina Jolie decided to have a double mastectomy to reduce her risk of developing breast cancer. She also plans to have her . . . → Read More: Angelina Jolie and the One Percent

More on My Story and Why My Reconstruction is Not a “Sexy Boob Job”

“More on My Story, Why My Reconstruction is Not a “Sexy Boob Job.” By Peggy Orenstein, Peggy Orenstein Blog.

“I don’t think women who choose bilateral mastectomy are cowards. But I also don’t think they are heroes. Not even Angelina Jolie. Is she really braver than someone who opted for surveillance, or to have her . . . → Read More: Why My Reconstruction is Not a “Sexy Boob Job”

No Easy Choices on Reconstruction

“No Easy Choices on Reconstruction.” By Roni Caryn Rabin, The New York Times Well Blog.

Last week the actress Angelina Jolie announced in The New York Times that she had had a double mastectomy in February after testing positive for a genetic mutation that put her at high risk for breast and ovarian cancer. She . . . → Read More: No Easy Choices on Reconstruction

The Chatter About Jolie

My bloggy friends have really hit some important notes about Angelina Jolie’s prophylactic bilateral mastectomies, a decision she made public in a recent editorial in the New York Times.

Jackie called out those who were judging her decision.

Marie wrote a good explainer about the BRCA gene and why its presence . . . → Read More: The Chatter About Jolie