Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff

“Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff.” Published by Ayanna Monteverdi, Mendelspod.com.

The first genetic counselor at Yale’s School of Medicine, Ellen Matloff has had a front row seat to the long saga of gene patents, particularly the BRCA patents of Myriad Genetics. In today’s interview Ellen recalls the days . . . → Read More: Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff

A Genetic Counselor Explains How Gene Patents Harmed Her Patients

“A Genetic Counselor Explains How Gene Patents Harmed Her Patients.” By Ellen Matloff, MS, Yale Cancer Center, Breast Cancer Action.

Editor’s Note: On July 13, 2013, the Supreme Court ruled in our favor to overturn Myriad Genetics’ patents on the “breast cancer genes,” BRCA1 and BRCA2. We were proud to be the only breast cancer . . . → Read More: A Genetic Counselor Explains How Gene Patents Harmed Her Patients

Our Genes, Their Secrets

“Our Genes, Their Secrets.” By Eleonore Pauwels, The New York Times.

The Supreme Court’s unanimous ruling last Thursday, barring patents on human genes, was a wise and balanced decision that clears away a major barrier to innovation in the areas of biotechnology, drug development and medical diagnostics. But the decision is just a first step . . . → Read More: Our Genes, Their Secrets

“I Discovered the BRCA1 Gene”

“I Discovered the BRCA1 Gene.” By Sara Reardon, Slate.

Mary-Claire King, the geneticist who discovered the BRCA1 gene, says she is delighted by the U.S. Supreme Court ruling that makes it illegal to patent it. Her work inspired the forthcoming film Decoding Annie Parker, in which she is portrayed by Helen Hunt.

Sara Reardon: . . . → Read More: “I Discovered the BRCA1 Gene”

Supreme Court says natural human genes can't be patented

“Supreme Court says natural human genes can’t be patented.” By Pete Williams and Erin McClam, NBC News.

The Supreme Court ruled unanimously Thursday that natural human genes cannot be patented by companies, but it said that synthetically produced genetic material can — a mixed ruling for the biotechnology industry. A naturally occurring piece of DNA . . . → Read More: Supreme Court says natural human genes can’t be patented

Why Jolie's cancer test costs so much

Published on CNN, May 24, 2013.

(CNN) — Angelina Jolie, when writing about her preventive double mastectomy, did not discuss how much her surgeries cost, but she did mention that many women would not be able to afford the $3,000 to $4,000 test that led her to make the decision. What she failed to say . . . → Read More: Why Jolie’s cancer test costs so much

“Angelina Jolie has made a legitimate choice, but the real question remains the search for the cure”

Breast Cancer Consortium member Grazia De Michele is an Italian-born researcher and historian currently living in the United Kingdom. Her doctoral thesis, “‘At the gates of civilization’: Southern children in Turin primary school from the 1950s-1970s,” analyzes the social construction of Southern migrants’ children during the post-war period. Grazia was diagnosed with breast cancer . . . → Read More: “Angelina Jolie has made a legitimate choice, but the real question remains the search for the cure”

The Chatter About Jolie

My bloggy friends have really hit some important notes about Angelina Jolie’s prophylactic bilateral mastectomies, a decision she made public in a recent editorial in the New York Times.

Jackie called out those who were judging her decision.

Marie wrote a good explainer about the BRCA gene and why its presence . . . → Read More: The Chatter About Jolie

Celebrity Breasts and Corporate Gene Patents

Actress Angelina Jolie leaves Lancaster House after attending the G8 Foreign Ministers’ conference on April 11, 2013 in London. (OLI SCARFF / GETTY IMAGES)

Angelina Jolie’s op-ed in The New York Times was big news yesterday. Jolie shared her family history of cancer, her own genetic mutation, and her choice to have prophylactic . . . → Read More: Celebrity Breasts and Corporate Gene Patents

“Who Owns Your Body?” ACLU Video

On May 12, 2009, the ACLU and the Public Patent Foundation (PUBPAT) filed a lawsuit charging that patents on two human genes associated with breast and ovarian cancer, BRCA1 and BRCA2, are unconstitutional and invalid. On November 30, 2012, the Supreme Court agreed to hear argument on the patentability of human genes. The . . . → Read More: “Who Owns Your Body?” ACLU Video