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“Poking Holes in Genetic Privacy.” By Gina Kolata, The New York Times. Not so long ago, people who provided DNA in the course of research studies were told that their privacy was assured. Their DNA sequences were on publicly available Web sites, yes, but they did not include names or other obvious identifiers. These were . . . → Read More: Poking Holes in Genetic Privacy
“I Discovered the BRCA1 Gene.” By Sara Reardon, Slate. Mary-Claire King, the geneticist who discovered the BRCA1 gene, says she is delighted by the U.S. Supreme Court ruling that makes it illegal to patent it. Her work inspired the forthcoming film Decoding Annie Parker, in which she is portrayed by Helen Hunt. — Sara Reardon: . . . → Read More: “I Discovered the BRCA1 Gene”
“Supreme Court says natural human genes can’t be patented.” By Pete Williams and Erin McClam, NBC News. The Supreme Court ruled unanimously Thursday that natural human genes cannot be patented by companies, but it said that synthetically produced genetic material can — a mixed ruling for the biotechnology industry. A naturally occurring piece of DNA . . . → Read More: Supreme Court says natural human genes can’t be patented 
Published on CNN, May 24, 2013. (CNN) — Angelina Jolie, when writing about her preventive double mastectomy, did not discuss how much her surgeries cost, but she did mention that many women would not be able to afford the $3,000 to $4,000 test that led her to make the decision. What she failed to say . . . → Read More: Why Jolie’s cancer test costs so much 
“Angelina Jolie and the One Percent” was originally published in Scientific American on May 20th, 2013. After learning that she had inherited a mutation on one of the so-called breast cancer genes, actress Angelina Jolie decided to have a double mastectomy to reduce her risk of developing breast cancer. She also plans to have her . . . → Read More: Angelina Jolie and the One Percent “Angelina Jolie has made a legitimate choice, but the real question remains the search for the cure”
Breast Cancer Consortium member Grazia De Michele is an Italian-born researcher and historian currently living in the United Kingdom. Her doctoral thesis, “‘At the gates of civilization’: Southern children in Turin primary school from the 1950s-1970s,” analyzes the social construction of Southern migrants’ children during the post-war period. Grazia was diagnosed with breast cancer . . . → Read More: “Angelina Jolie has made a legitimate choice, but the real question remains the search for the cure”
“No Easy Choices on Reconstruction.” By Roni Caryn Rabin, The New York Times Well Blog. Last week the actress Angelina Jolie announced in The New York Times that she had had a double mastectomy in February after testing positive for a genetic mutation that put her at high risk for breast and ovarian cancer. She . . . → Read More: No Easy Choices on Reconstruction 
My bloggy friends have really hit some important notes about Angelina Jolie’s prophylactic bilateral mastectomies, a decision she made public in a recent editorial in the New York Times. Jackie called out those who were judging her decision. Marie wrote a good explainer about the BRCA gene and why its presence . . . → Read More: The Chatter About Jolie
“What Angelina Jolie forgot to mention.” By H. Gilbert Welch, CNN.com. I checked my e-mail messages — they all seemed to be about Angelina Jolie’s op-ed. I found it to be a moving story and understood her choice. As the day wore on, the story dominated the news. I didn’t fully appreciate how much Ms. . . . → Read More: What Angelina Jolie forgot to mention
“The Jolie Treatment.” By Cheryl Lemus, Nursing Clio Blog. In the past few days, Americans (and I am sure many people around the globe) have read Angelina Jolie’s startling announcement that she recently underwent a preventative double mastectomy and reconstructive surgery (and as I understand she will also have her ovaries removed). Like most people, . . . → Read More: The Jolie Treatment |
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