Among the Metavivors: Social Media and Illness Narratives of Stage IV Breast Cancer Patients

Abstract

Dominant breast cancer narratives equate early detection and screening with “cure,” advocate for “awareness,” and identify women who undergo treatment for early stage disease as “survivors.” Left out of these narratives are the “metavivors”: women and men diagnosed with “incurable” metastatic breast cancer, also known as Stage IV. This article uses case studies to . . . → Read More: Among the Metavivors: Social Media and Illness Narratives of Stage IV Breast Cancer Patients

Intimacy Survey for People with Advanced Breast Cancer

METAvivor is a nonprofit organization dedicated to metastatic breast cancer (MBC) awareness, research, and support.

As part of this effort, METAvivor developed a project to explore the diverse problems and challenges people with MBC (also known as advanced breast cancer) have regarding sexual and emotional intimacy. In addition to detailing issues and concerns among . . . → Read More: Intimacy Survey for People with Advanced Breast Cancer

LBBC's Hear My Voice Awards - Metastatic Breast Cancer Awareness Day

Press Release: Sheila McGlown and Beth Caldwell to receive first ever Hear My Voice Awards for their work to change the conversation about Metastatic Breast Cancer

(PHILADELPHIA, PA) — Living Beyond Breast Cancer (LBBC), the national information and support organization, will recognize two women for their work to educate the public about metastatic breast cancer . . . → Read More: LBBC’s Hear My Voice Awards – Metastatic Breast Cancer Awareness Day

Breast cancer awareness also includes who’s paying for campaigns

“Breast cancer awareness also includes who’s paying for campaigns” by Sharon Batt, Toronto Star.

Drug access campaigns have wide emotional appeal but they also reflect a genuine desire by patients with life-threatening diagnoses for a magic bullet. Fewer than 1-in-10 new drugs, however, provide therapeutic advantage over existing drugs.

A new campaign that caught my . . . → Read More: Breast cancer awareness also includes who’s paying for campaigns

Cancer Cells Spread Way Earlier Than Thought

“Cancer Cells Spread Way Earlier Than Thought,” Sharon Begley, STAT.

A highly readable article by journalist Sharon Begley in STAT discusses new research demonstrating that cancer cells are able to spread from a tumor much earlier than once believed. What’s more, these cells are more adept at forming potentially lethal metastases at distant sites (such . . . → Read More: Cancer Cells Spread Way Earlier Than Thought

A few words about Jody Schoger

Our friend and colleague Jody Schoger died on May 18th at age 61 from metastatic breast cancer. She learned of her recurrence in April of 2013, following a 15-year remission. The news was shocking and devastating. But Jody, ever the rational and reflective patient advocate, shared her thoughts on the only ‘good’ way to cope . . . → Read More: A few words about Jody Schoger

Powerful advocate for breast cancer survivors dies

“Powerful advocate for breast cancer survivors dies” by Liz Szabo, USA Today.

Jody Schoger understood what it meant to be isolated. She once described how she “curled up like a turtle” in her hospital bed while fighting the life-threatening infection that followed surgery for breast cancer in 1998.

“I remember never even opening the blinds, . . . → Read More: Powerful advocate for breast cancer survivors dies

We Love You, Jody

In the spring of 2013, our friend and colleague Jody Schoger was diagnosed with a breast cancer recurrence. After 15 years of remission, she was thrown back into breast cancer treatment. Only this time, it was a metastatic lobular breast cancer and life changed forever.

Living with an incurable cancer meant coming to terms with . . . → Read More: We Love You, Jody

Jennie, A Steel Twig

I just returned from the San Antonio Breast Cancer Symposium, the most important breast cancer conference in the world held annually in the United States. Thanks to a scholarship from Advocates for Breast Cancer, a nonprofit organization founded and directed by Susan Zager, I had the opportunity to participate in this intense week of scientific . . . → Read More: Jennie, A Steel Twig

Breast cancer patients share DNA data

“Breast cancer patients share DNA data,” The Boston Globe, Oct. 28, 2015.

Accessing an untapped data source — the DNA of metastatic patients.

The Metastatic Breast Cancer Project — a collaboration of the Broad, the Dana-Farber Cancer Institute, and Harvard Medical School, launched this month, asks individuals who have been diagnosed with metastatic breast . . . → Read More: Breast cancer patients share DNA data

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