Among the Metavivors: Social Media and Illness Narratives of Stage IV Breast Cancer Patients

Abstract

Dominant breast cancer narratives equate early detection and screening with “cure,” advocate for “awareness,” and identify women who undergo treatment for early stage disease as “survivors.” Left out of these narratives are the “metavivors”: women and men diagnosed with “incurable” metastatic breast cancer, also known as Stage IV. This article uses case studies to . . . → Read More: Among the Metavivors: Social Media and Illness Narratives of Stage IV Breast Cancer Patients

I'm Not The Perfect Cancer Survivor. But I've Learned To Live With That

by Adam Bessie, Marc Parenteau, and Gayle Sulik, Narratively, February 16, 2017.

Adam Bessie is a San Francisco Bay Area based writer, whose comics on living with cancer have been featured in The Boston Globe, The Pacific Standard, Fusion, and more. See an extra, unpublished scene from this comic and the rest of this series . . . → Read More: I’m Not The Perfect Cancer Survivor. But I’ve Learned To Live With That

Book Review: Hospital Land USA

Death is certain. Time of death is not. But in Hospital Land USA, the other S&M (Science and Medicine) as Wendy Simonds calls it, death is a failure, something to be suspended and avoided at whatever cost. And there is no safe word. The surreal ordinariness of it all – from appointments and forms to . . . → Read More: Book Review: Hospital Land USA

Oncofertility: Beyond Biological Motherhood, Towards Reproductive Justice

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Is Childlessness Really Another Side Effect of Cancer?

The emphasis on biological motherhood in the field of oncofertility masks at least two societal forces contributing to the cancer/infertility equation.

First, the conditions in which people live and work are are already linked to cancers and adverse effects on women’s . . . → Read More: Oncofertility: Beyond Biological Motherhood, Towards Reproductive Justice – 3

Oncofertility: Beyond Biological Motherhood, Towards Reproductive Justice

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Rethinking Normative Expectations

As professionals, we have to balance our responsibility to care, inform and research for safer fertility treatments while respecting women’s choices that may at times go against dominant models of womanhood. In doing so, it is crucial to acknowledge several problems stemming from norms about reproduction . . . → Read More: Oncofertility: Beyond Biological Motherhood, Towards Reproductive Justice – 2

Oncofertility: Beyond Biological Motherhood, Towards Reproductive Justice

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Cancer and cancer treatments can have a huge impact on women’s sexual and reproductive health. Yet, when I started my research on breast cancer and social inequality in Spain a decade ago this issue was hardly being addressed in international scholarly debates or in clinical settings. Several of the . . . → Read More: Oncofertility: Beyond Biological Motherhood, Towards Reproductive Justice

Book Review: Cancer Was Not A Gift, And It Didn't Make Me A Better Person

Nancy Stordahl is a former educator, breast cancer blogger at NancysPoint, and a friend of mine. I was delighted to get my signed copy of her self-published memoir Cancer Was Not A Gift & It Didn’t Make Me A Better Person, about her personal experiences with breast cancer. Some of these I already knew about . . . → Read More: Book Review: Cancer Was Not A Gift, And It Didn’t Make Me A Better Person

Radical Objects: ‘Cancer Sucks’

Radical Objects: ‘Cancer Sucks’ by Grazia de Michele, History Workshop Online, July 11, 2016.

Photo Credit: Ken Fisher

In September 1995, Lucy Sherak was diagnosed with breast cancer at the age of 43. A mother of two, she was an occupational psychologist living in Marin County, California. She had previously worked as a . . . → Read More: Radical Objects: ‘Cancer Sucks’

Breast Reconstruction in Oncology and Cosmetic Surgery: A Comparative Sociological Analysis

Breast Cancer Consortium heartily congratulates BCC partner Cinzia Greco on the successful completion and formal defense of her dissertation research at the École des hautes études en sciences sociales (EHESS) and CERMES3 laboratory. Her comparative research in France and Italy explores how patients and doctors view and manage post-mastectomy breast reconstruction versus cosmetic breast surgery.

. . . → Read More: Breast Reconstruction in Oncology and Cosmetic Surgery: A Comparative Sociological Analysis

Eva Endures

By Christine Byl

Author Christine Byl writes in memory of her friend Eva Saulitus, an author and field biologist who died of metastatic breast cancer on January 16th, 2016 at age fifty-two. We shared an excerpt of one of Eva’s writings, Wild Darkness, on Breast Cancer Consortium last year and were deeply saddened to learn . . . → Read More: Eva Endures

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