Cancer Researchers Find “The Angelina Jolie Effect”

“Cancer Researchers Find “The Angelina Jolie Effect” By Kyle Hill, Nerdist.

When Angelina Jolie learned about her own genetic predisposition to breast cancer – and made her diagnosis and treatment very public – she unknowingly urged thousands of women to follow her lead. The announcement of her surgery was maybe more galvanizing than any recent . . . → Read More: Cancer Researchers Find “The Angelina Jolie Effect”

Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff

“Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff.” Published by Ayanna Monteverdi, Mendelspod.com.

The first genetic counselor at Yale’s School of Medicine, Ellen Matloff has had a front row seat to the long saga of gene patents, particularly the BRCA patents of Myriad Genetics. In today’s interview Ellen recalls the days . . . → Read More: Yale Genetic Counselor Weighs in on Myriad Case and More: Ellen Matloff

A Genetic Counselor Explains How Gene Patents Harmed Her Patients

“A Genetic Counselor Explains How Gene Patents Harmed Her Patients.” By Ellen Matloff, MS, Yale Cancer Center, Breast Cancer Action.

Editor’s Note: On July 13, 2013, the Supreme Court ruled in our favor to overturn Myriad Genetics’ patents on the “breast cancer genes,” BRCA1 and BRCA2. We were proud to be the only breast cancer . . . → Read More: A Genetic Counselor Explains How Gene Patents Harmed Her Patients

Jolie’s Disclosure of Preventive Mastectomy Highlights Dilemma

“Jolie’s Disclosure of Preventive Mastectomy Highlights Dilemma.” By Denise Grady, The New York Times.

One of the defining moments in the history of breast cancer occurred in 1974 when the first lady, Betty Ford, spoke openly about her mastectomy, lifting a veil of secrecy from the disease and ushering in a new era of breast . . . → Read More: Jolie’s Disclosure of Preventive Mastectomy Highlights Dilemma

“Who Owns Your Body?” ACLU Video

On May 12, 2009, the ACLU and the Public Patent Foundation (PUBPAT) filed a lawsuit charging that patents on two human genes associated with breast and ovarian cancer, BRCA1 and BRCA2, are unconstitutional and invalid. On November 30, 2012, the Supreme Court agreed to hear argument on the patentability of human genes. The . . . → Read More: “Who Owns Your Body?” ACLU Video

Patients, Patents, and Profits in a Genomic Age

When the Human Genome Project started in 1990 there were fewer than 100 genes associated with human diseases. The first genetic mutation (for Huntington’s disease) was identified in 1986, just a few years before the Project started. After more than a decade of technological innovation and about $3.8 billion, a team of scientists across more . . . → Read More: Patients, Patents, and Profits in a Genomic Age

Can We Patent Life?

“Can We Patent Life?” By Michael Specter, The New Yorker.

On April 12, 1955, Jonas Salk, who had recently invented the polio vaccine, appeared on the television news show “See It Now” to discuss its impact on American society. Before the vaccine became available, dread of polio was almost as widespread as the disease itself. . . . → Read More: Can We Patent Life?