Alicia Staley, Jody Schoger, and Deanna Attai, the women who created #BCSM (Breast Cancer Social Media) — an online community for people who have breast cancer — were on a panel at South by Southwest (SXSW) in Austin, Texas on March 10, 2014. Xeni Jardin from boing boing moderated the panel.

“On Independence Day 2011, the first-ever #BCSM tweetchat for those affected by breast cancer took place. Less than two years later, the group had attracted thousands of participants, spawned a website and a YouTube channel and earned an extensive feature in USA Today. #BCSM isn’t a prototypical breast cancer organization. The group has been, since its founding, focused on attracting a diverse and inclusive group who shared not only cancer, but a set of shared values — particularly a commitment to evidence — that created a sense of authority even as it built community. Those are lessons that can and should be adopted by those looking to connect with similarly isolated communities, and the founders of #BCSM look forward to sharing what they have learned.”

This video explains some of what’s behind #BCSM.

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