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“Human Gene Patentability Case Heads To Supreme Court.” By Sharon Begley, Reuters (via Huffington Post). The U.S. Patent and Trademark Office has granted patents on at least 4,000 human genes to companies, universities and others that have discovered and decoded them. Patents now cover some 40 percent of the human genome, according to a scientific . . . → Read More: Human Gene Patentability Case Heads To Supreme Court 
From Pink to Green by Barbara Ley explores breast cancer within the larger context of women’s health at the nexus of environmental and health social movements in the United States. Chronicling the environmental breast cancer movement from its beginnings, Ley explains how different advocacy organizations (from Breast Cancer Action and the Breast Cancer Fund . . . → Read More: Book Review — From Pink to Green: Disease Prevention and the Environmental Breast Cancer Movement
“The Anti-Nonprofit: Risk, Chance, Timing, Innovation and No Regrets.” By Matthew Zachary Huffington Post. Wake up, people. It’s 2013. For those of you as fortunate (unfortunate?) as I am to have founded a charity, the time has come to ask yourself what the word “impact” means to you and if, in fact, your efforts are . . . → Read More: The Anti-Nonprofit: Risk, Chance, Timing, Innovation and No Regrets
“Message from a Patient: Whole Genome Sequencing Not Clinical Yet.” Interview with Jay and Joe Lake, Mendelspod.com). Jay Lake is a sci-fi writer and compulsive blogger. He is also a patient. Jay blogs often about his daily medical experiences and has built up a large following in addition to his sci-fi fan base. Jay recounts . . . → Read More: Message from a Patient: Whole Genome Sequencing Not Clinical Yet
“The Ethical Implications of Gene Patenting” Empowered Doctor. Do genes qualify as a property that a single individual or corporation is allowed exclusive rights to? On April 15, 2013 the Supreme Court will hear a case that could dictate the future of biomedicine. Currently, Myriad Genetics Corporation, a biotechnology company in Utah, has patented two . . . → Read More: The Ethical Implications of Gene Patenting 
There is a growing body of evidence that patients who are more actively involved in their health care have better outcomes and incur lower medical costs. An article by David Veroff, Amy Marr, and David Wennberg in Health Affairs titled, “Enhanced Support for Shared Decision Making Reduced Costs of Care for Patients with Preference-Sensitive Conditions” . . . → Read More: Research Brief — Enhanced Support for Shared Decision Making
“Thoughts on Twitter, Community, and Loss.” By Dr. Deanna Attai, Dr Attai Blog. Today I had the privilege of attending a memorial service for a woman that I met only once. I initially got to know her on twitter. I attended the memorial service with 2 women who I also met on twitter. Yes, twitter. . . . → Read More: Thoughts on Twitter, Community, and Loss
“Can We Patent Life?” By Michael Specter, The New Yorker. On April 12, 1955, Jonas Salk, who had recently invented the polio vaccine, appeared on the television news show “See It Now” to discuss its impact on American society. Before the vaccine became available, dread of polio was almost as widespread as the disease itself. . . . → Read More: Can We Patent Life?
“Doctor, What Would You Do If You Were Me?” By Dr. Nortin M. Hadler, Scientific American. For nearly 50 years, no prescription drug could be marketed unless the FDA was convinced that it had a tolerable benefit-to-risk ratio based on scientific studies. The bar for devices (like hip replacements) and procedures (like liposuction) is not . . . → Read More: Doctor, What Would You Do If You Were Me?
“Twitter Community #BCSM Expands Online To Broaden Patient Engagement.” By Dan Munro, Forbes. Last week, the ongoing twitter conversation under the hashtag #BCSM officially expanded online in support of the global breast cancer community. The new website is here: http://www.bcsmcommunity.org – and there’s a companion YouTube Channel here. The hashtag itself stands for Breast Cancer . . . → Read More: Twitter Community #BCSM Expands Online To Broaden Patient Engagement |
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