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On May 12, 2009, the ACLU and the Public Patent Foundation (PUBPAT) filed a lawsuit charging that patents on two human genes associated with breast and ovarian cancer, BRCA1 and BRCA2, are unconstitutional and invalid. On November 30, 2012, the Supreme Court agreed to hear argument on the patentability of human genes. The . . . → Read More: “Who Owns Your Body?” ACLU Video 
“Why did Komen for the Cure give Nancy Brinker a 64 percent raise?” By Mary Elizabeth Williams, Salon.com. Komen, already under fire for shrinking contributions for breast cancer research, paid its CEO $684,000 last year. In 2012, the breast cancer organization ignited a firestorm by announcing it was pulling its funding for breast cancer screenings . . . → Read More: Why did Komen for the Cure give Nancy Brinker a 64 percent raise?
“Forget Pink-Remember Rose.” By Peggy Orenstein, Blog. There were a couple of things that got cut from my New York Times Magazine piece on breast cancer that I wish I could’ve squeezed in. One is kind of wonky, which is why it was dropped, but super important. It’s about data collection, based on a discussion . . . → Read More: Forget Pink–Remember Rose
“Our Feel-Good War on Breast Cancer: MBCN Responds.” By Katherine O’Brien, MBCN Secretary, Metastatic Breast Cancer Network. Editor’s Note: Peggy Orenstein’s April 25, 2013 article–the cover story for this Sunday’ s New York Times’ Magazine, demonstrates a remarkable depth and thoughtfulness. It is long–but well-worth the effort to read. For those looking for a quick . . . → Read More: Our Feel-Good War on Breast Cancer: MBCN Responds 
“Our Feel-Good War on Breast Cancer.” By Peggy Orenstein, The New York Times Magazine. I used to believe that a mammogram saved my life. I even wrote that in the pages of this magazine. It was 1996, and I had just turned 35 when my doctor sent me for an initial screening — a . . . → Read More: Our Feel-Good War on Breast Cancer
“States Take Drug Makers to Court Over Marketing.” By Peter Loftus, Wall Street Journal. Authorities in some U.S. states have become more aggressive in accusing drug makers of deceptive marketing, widening the potential liability for an industry that has shelled out billions of dollars to settle investigations led by the federal government. A key legal . . . → Read More: States Take Drug Makers to Court Over Marketing
“Are Pricey Computer-Aided Mammograms Worth It?” By Christine Norton and Karen Sepucha, Health News Review). Health News Review evaluates health reporting on medical interventions from the top ten circulating newspapers in the United States. The evaluation is based on established criteria related to costs of the intervention, quantification of benefits and harms, critical evaluation of . . . → Read More: Are Pricey Computer-Aided Mammograms Worth It?
“Human Gene Patentability Case Heads To Supreme Court.” By Sharon Begley, Reuters (via Huffington Post). The U.S. Patent and Trademark Office has granted patents on at least 4,000 human genes to companies, universities and others that have discovered and decoded them. Patents now cover some 40 percent of the human genome, according to a scientific . . . → Read More: Human Gene Patentability Case Heads To Supreme Court
“The Anti-Nonprofit: Risk, Chance, Timing, Innovation and No Regrets.” By Matthew Zachary Huffington Post. Wake up, people. It’s 2013. For those of you as fortunate (unfortunate?) as I am to have founded a charity, the time has come to ask yourself what the word “impact” means to you and if, in fact, your efforts are . . . → Read More: The Anti-Nonprofit: Risk, Chance, Timing, Innovation and No Regrets
“Message from a Patient: Whole Genome Sequencing Not Clinical Yet.” Interview with Jay and Joe Lake, Mendelspod.com). Jay Lake is a sci-fi writer and compulsive blogger. He is also a patient. Jay blogs often about his daily medical experiences and has built up a large following in addition to his sci-fi fan base. Jay recounts . . . → Read More: Message from a Patient: Whole Genome Sequencing Not Clinical Yet |
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