San Antonio Breast Cancer Symposium (SABCS)

“San Antonio Breast Cancer Symposium (SABCS) Underway,” SABCS.

The San Antonio Breast Cancer Symposium (SABCS) is the largest scientific meeting devoted to breast cancer. Geared primarily for clinicians and researchers, breast cancer advocates now regularly attend the meeting. For 16 years, the Alamo Breast Cancer Foundation (ABCF) has planned and run a . . . → Read More: San Antonio Breast Cancer Symposium (SABCS)

My Great-Great-Aunt Discovered Francium. And It Killed Her.

“My Great-Great-Aunt Discovered Francium. And It Killed Her.” By Veronique Greenwood, The New York Times Magazine.

75 years ago, Marguerite Perey unearthed an element on the periodic table while working as a technician in Marie Curie’s lab. Her achievement came at a great cost.

Science moved on, as it does; in 20 years’ . . . → Read More: My Great-Great-Aunt Discovered Francium. And It Killed Her.

Pink Fracking Drill Bits on The Daily Show

Breast Cancer Action Featured on The Daily Show, Explaining Pinkwashing and those Pink Fracking Drill Bits

The Daily Show Get More: Daily Show Full Episodes,Indecision Political Humor,The Daily Show on Facebook

. . . → Read More: Pink Fracking Drill Bits on The Daily Show

A slow walk into the amazing now

“A slow walk into the amazing now: How a day with a sick friend brought me back to my senses.” By Ann Lamott, Salon.

Barbara was the executive director of Breast Cancer Action, the bad girls of breast cancer, a grassroots advocacy group with a distinctly bad attitude towards the pink ribbon approach. Susie was . . . → Read More: A slow walk into the amazing now

15 Influential ePatients and Patient Advocates to Follow

“15 Influential ePatients and Patient Advocates to Follow.” By Erica Garvin, Health IT.

Whether its public speaking, blogging, or tweeting, these empowered ePatient and patient advocates are changing the way we think about our role in healthcare.

It’s patients who have used mobile technologies and social media outlets to tell their stories—who use apps and . . . → Read More: 15 Influential ePatients and Patient Advocates to Follow

Seeing Red During Breast Cancer Awareness Month

“Seeing Red During Breast Cancer Awareness Month.” By Anne Loeser, NPR.

The public has often been misled by pink ribbon messages that exaggerate prevention and cures for breast cancer.

The lump first surfaced in my breast in 1989, when I was 36 years old. My mammogram was completely normal. But four years later . . . → Read More: Seeing Red During Breast Cancer Awareness Month

Stink Pink

“Stink Pink” By Phil Brown, Huffington Post.

What does it mean “to pink?” It means corporations get to look charitable, while getting cheap advertising. It means that people buy into a commodification of the suffering of women who have had breast cancer and their families, and the fears of so many others that they may . . . → Read More: Stink Pink

Tinged Pink: When The Cancer Narrative Can't Compass Your Loss

“Tinged Pink: When The Cancer Narrative Can’t Compass Your Loss.” By Erika Anderson, Gawker.

The American insistence on hope has become a burden. It’s the smile stamped on tragedy. Not only must you brace for the inevitable, but you must do so with glee. Consider the man who marathons even though he’s dying of brain . . . → Read More: Tinged Pink: When The Cancer Narrative Can’t Compass Your Loss

Living with stage 4

“Living with stage 4,” By Diane Mapes, Hutch News, Oct. 24, 2014.

In a culture focused on survivorship, those with metastatic breast cancer who will be in treatment for the rest of their lives can feel isolated and misunderstood.

An estimated 155,000-plus women (and men) in the U.S. currently live with “mets,” stage 4 . . . → Read More: Living with stage 4

When The TODAY Show Told This Metastatic Breast Cancer Warrior She Wasn’t Bald Enough

“When The TODAY Show Told This Metastatic Breast Cancer Warrior She Wasn’t Bald Enough.” By Jennifer Campisano, Women You Should Know.

How could the media continue to trivialize and “pink-ify” our disease, while pushing those of us who will die from it to the sidelines?

It started with an article about Joan Lunden, . . . → Read More: When The TODAY Show Told This Metastatic Breast Cancer Warrior She Wasn’t Bald Enough

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