Among the Metavivors: Social Media and Illness Narratives of Stage IV Breast Cancer Patients

Abstract

Dominant breast cancer narratives equate early detection and screening with “cure,” advocate for “awareness,” and identify women who undergo treatment for early stage disease as “survivors.” Left out of these narratives are the “metavivors”: women and men diagnosed with “incurable” metastatic breast cancer, also known as Stage IV. This article uses case studies to . . . → Read More: Among the Metavivors: Social Media and Illness Narratives of Stage IV Breast Cancer Patients

BCC Hot Topic: Pinkwashing

Pinkwashing: supporting the breast cancer cause or promoting a pink ribbon product while producing, manufacturing, and/or selling products linked to the disease. In recent years the definition has expanded to include any company or organization that exploits breast cancer for profit or public relations motivations.

See also: Breast Cancer Brand, Cause Marketing, Environment

. . . → Read More: BCC Hot Topic: Pinkwashing

Intimacy Survey for People with Advanced Breast Cancer

METAvivor is a nonprofit organization dedicated to metastatic breast cancer (MBC) awareness, research, and support.

As part of this effort, METAvivor developed a project to explore the diverse problems and challenges people with MBC (also known as advanced breast cancer) have regarding sexual and emotional intimacy. In addition to detailing issues and concerns among . . . → Read More: Intimacy Survey for People with Advanced Breast Cancer

Many Breast Cancer Patients Receive More Radiation Therapy Than Needed

“Many Breast Cancer Patients Receive More Radiation Therapy Than Needed,” NPR Shots.

A growing number of patients and doctors are concerned about overtreatment, which is rampant across the health care system. From duplicate blood tests to unnecessary knee replacements, millions of patients are being bombarded with screenings, scans and treatments that offer little or no . . . → Read More: Many Breast Cancer Patients Receive More Radiation Therapy Than Needed

BCC Hot Topic: Critical Health Literacy

Critical Health Literacy: understanding medical situations to make reasoned assessments of medical options, including their benefits, risks, and limitations. It involves extracting information, comprehending its relevance, and analyzing it effectively so that it may be used for one’s own benefit and for the benefit of society.

Health literacy is more than being able to read . . . → Read More: BCC Hot Topic: Critical Health Literacy

“This Is Bad Enough” by Elspeth Murray

“This is bad enough” was written by poet Elspeth Murray for the launch of the cancer information reference group of SCAN, the South East Scotland Cancer Network (January 20, 2006). Her poem is a plea for clarity in an increasingly complex health care system that too often relies on jargon rather than information and tools . . . → Read More: “This Is Bad Enough” by Elspeth Murray

LBBC's Hear My Voice Awards - Metastatic Breast Cancer Awareness Day

Press Release: Sheila McGlown and Beth Caldwell to receive first ever Hear My Voice Awards for their work to change the conversation about Metastatic Breast Cancer

(PHILADELPHIA, PA) — Living Beyond Breast Cancer (LBBC), the national information and support organization, will recognize two women for their work to educate the public about metastatic breast cancer . . . → Read More: LBBC’s Hear My Voice Awards – Metastatic Breast Cancer Awareness Day

Breast cancer awareness also includes who’s paying for campaigns

“Breast cancer awareness also includes who’s paying for campaigns” by Sharon Batt, Toronto Star.

Drug access campaigns have wide emotional appeal but they also reflect a genuine desire by patients with life-threatening diagnoses for a magic bullet. Fewer than 1-in-10 new drugs, however, provide therapeutic advantage over existing drugs.

A new campaign that caught my . . . → Read More: Breast cancer awareness also includes who’s paying for campaigns

#BreastCancerRealityCheck

On Saturday, October 7th, there was an hour-long twitterstorm – #BreastCancerRealityCheck – dedicated to the following:

Move beyond superficial “raising awareness” to focus on more education and research that will SAVE LIVES Dispel the myths about prevention and early detection Reveal the candid realities of people (women and men) living with ALL stages of . . . → Read More: #BreastCancerRealityCheck

Right Care Action Week: October 15-21

The Lown Institute’s Right Care Alliance (RCA) is revving up across the country for Right Care Action Week (October 15-21). For the third consecutive year, healthcare practitioners and ‘consumers’ alike will ask people ‘What worries you most about healthcare?’ — with this year’s focus being on what drives up health care costs.

Some cost pushers . . . → Read More: Right Care Action Week: October 15-21

Articles & Posts